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Thread: Ttc 2013
May 31st, 2013 08:31 PM #1176
I had my talk about options appt today. I got all my labs back and hubby's too. I am a fertile myrtle just like the rest of my family ... except for those stupid tubes. The dr said my hubby had half a billion sperm in his specimen, all swimming and doing their spermy thing. It's looking like 90% IVF for us. There is a super slim chance they could repair my tubes since they are so dialated. I have a follow up why gyn or gyn/onc to see about surgery which I will most definitely be having. They'll go in and either remove or repair one or both tubes based on how they look and the amt of scar tissue in there. Then IVF time (unless they can make me a working tube). The fluid in the hydrosalpinx is toxic to embryos so they have to do something to them. Not sure what righ now. I also am going to meet with a geneticist about testing the blastocytes for at least SOME autoimmune marker. I'm still not sure if that part is possible, but I might as well make an appt.
We're moving up the timeline to this January! I could maybe have that baby before I'm 30 after all. The clinic where I go actually has pretty good prices. They do ICIS on all patients as part of their fixed price (so 9500), and since they are a govt institution, they get good med prices too (about 1000, compared to other places at 3-4k). Another 600 for a practice run which you have to do for more uterus mapping or something. So maybe 11000 all in all (not including genetics or freezing at this pt). In January we could file our taxes early and get a big chunk back. We both have birthdays coming up, and I know what we're requesting - CASH. And for Chanukah ... more CASH. My hubby told me MIL would pitch in a little. Since my own mom hates to be outdone by anyone EVER, she'll probably pitch in a lil too.
We're doing all our home reno' right now too so it's not looming on us when we do the IVF (a scaled back version though). I have so much to think about I really can't fall asleep like I should be right now. Sigh.“And remember, my sentimental friend, that a heart is not judged by how much you love, but by how much you are loved by others.” L. Frank Baum, The Wizard of Oz
May 31st, 2013 09:51 PM #1178
Very exciting, poppy! Glad everything else is working like clockwork.
We irrigate the sh*! out of most structures in the abdomen and pelvis all the time. Can the gynos not simply flush the tubes, once they create a neostoma at the end?
Re: PIGD: single-cell PCR is VERY hard, technically speaking [due to a phenomenon called allele dropout] and there are only three laboratories in the country which do it (all the PIGD for the whole US). It is also horrendously expensive. Besides the HLA B27 do you know of any markers for pan-inflammatory, autoimmune conditions?XY: Antoine Raphael (3.1.2012)
XX: Cassia Viviane Noor (11.30.2013)
June 1st, 2013 06:19 AM #1180
Blade, the problem with the tubes, as i have been told, is even if they can pop them open, the cilia are so damaged and the walls so weak from being very dilated that the fertilized egg might not be able to make it all the way down the tube, and there is a very high risk of ectopic pg. The prognosis of hydrosalpinx repair with a diameter greater than 3 cm is very poor (I think I fall in that category). Then there's the risk of more scaring, more adhesions, and the giant risk of ectopic pg and its potential to rupture and then damage the poor tube even more. I feel kind of meh about it all. Part of me just wants to stop wasting time and get pg already! I want that baby before 30 and part of me is just like okay whatever, pregnant now please. It would SUCK to get the repair, then TTC for another yr (and fail), then have ANOTHER surgery to plug it up, and then get IVF. Since I have to have surgery, if one tube looks good and i mean d@mn good, then I'll let them fix it. But only if I have some rock star tube that just needs a little help. I'm hoping to have this surgery in the fall.
I think HLA-B27 is the only one that I know of and the only one listed on this exciting list that seems pertinent to autoimmune PGD (an exciting little article for anyone else that is interested/curious). I THINK I've been tested for this, and if I'm correct then I have the gene (not shocking). Bleh I just looked up the cost of testing (2500-7500), and I'm not sure it's worth it for a non-lethal disease (and therapy is SO much better now than when I got diagnosed in the mid-eighties when they had no biologics - now some are approved for kids as young as two!). I think it's still worth looking into, maybe there's a research study I can get hooked up with or something.
I'm actually REALLY excited about pregnancy for the first time in a long while. My husband's gametes have never even met my gametes before! I feel giddy like a first date (; I'm excited about future little poppyseed even if it means big bucks.“And remember, my sentimental friend, that a heart is not judged by how much you love, but by how much you are loved by others.” L. Frank Baum, The Wizard of Oz
June 1st, 2013 07:08 AM #1182
@poppy528 it is nice that you're excited again. Made me smile with your comment about the gametesMother to miss Mila Arden. Expecting her brother Cato Bennett in March 2014
June 1st, 2013 09:32 AM #1184
@Blade, I understand. That's why I'm going beyond my homeopath. She is wonderful. BUT this is something beyond her expertise. My OB was my primary for the first 4 years in this "journey", but she never really....did anything. I mean. She checked my thyroid a ga-ba-zillion times. She said Clomid and meds of that nature aren't what I need (obviously because of the multiple miscarriages). But she didn't have a definite answer. So, I started pursuing alternative medicinal approaches.
The way I feel and how I function day-to-day has been like night and day. I feel better than I have in years! And while I haven't been pregnant in the last 7-8 months, I also haven't lost. So, that's big with me. In the last 4-5 years, I would conceive, carry for 5-10 weeks (mostly 6 weeks) and then miscarry. Around 3 months later, I would repeat the cycle.
There is a fertility specialist that is around 2 1/2 hours from us (We don't have one locally) that I am looking into. I'm checking references etc. He practices at an office fairly close to us (an hour away) once a month.mamacravings.com
Everything a mama could want
Blessed mama to 3 year-old Elijah Myles & to 6 precious angels babies.
Amelia Wren, Charlotte Adair, Josepine Elise, Genevieve Ruth, Susanna Caroline, Cordelia Mae
Josiah Davis, Charles Asher, Jeremiah August, Lawrence Henry